It’s been a while since I’ve written anything about FOP. I couldn’t decide if I had any more to share. I’ve also been pretty busy. For a quick life update: I now live in Los Angeles and go to UCLA law! And I love it here. But if there is one thing most people know …
Category Archives: Uncategorized
The Necessary Overthinker
I have always been a very cerebral person and I couldn’t tell you a time where my mind wasn’t racing with thoughts. But recent reflection has made me realize just how much of my overthinking is due to FOP. Shy, socially anxious, immature, however you want to label it, I am often uncomfortable in social …
Acknowledge Ableism
As an American society, we are very hesitant to admit our prejudices. The important thing is to remember that privilege is not your fault, but it is your responsibility to be aware of it and to try to use it for good. There is no need to be guilty for not being discriminated against, nobody …
The Freshman 15
Almost every single person I meet comments on how small I am, whether it be that I am only 5 feet tall or that I am skinny. I rarely get through a day without someone pointing out that I am small. I have always been skinny and I never had a huge appetite, but I …
My First Blog Post
Adversity, which looks and feels like such a determined enemy, can become a valuable ally. Only you can decide which it will be. — Joni Eareckson Tada Fibrodysplasia Ossificans Progressiva (FOP) is one of the world’s rarest diseases and the only known to man that turns one organ system into another. To put it in …
Meet Me
My name is Natalie McGuire. I am a twenty year old senior at the University of Michigan. I am a daughter, a sister, a friend, a dog person, a feminist, a Canadian, an immigrant, an avid reader, a music lover and so many other things. The thing that I’m probably the least likely to tell …
Medulla Ossium 