My life with FOP
Finding the marrow through the bone
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Featured
My First Blog Post
Adversity, which looks and feels like such a determined enemy, can become a valuable ally. Only you can decide which it will be. — Joni Eareckson Tada Fibrodysplasia Ossificans Progressiva (FOP) is one of the world’s rarest diseases and the only known to man that turns one organ system into another. To put it in… Read more
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Feminine Disability: An oxymoron?
It’s been a while since I’ve written anything about FOP. I couldn’t decide if I had any more to share. I’ve also been pretty busy. For a quick life update: I now live in Los Angeles and go to UCLA law! And I love it here. But if there is one thing most people know… Read more
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The Necessary Overthinker
I have always been a very cerebral person and I couldn’t tell you a time where my mind wasn’t racing with thoughts. But recent reflection has made me realize just how much of my overthinking is due to FOP. Shy, socially anxious, immature, however you want to label it, I am often uncomfortable in social… Read more
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Medulla Ossium 