My First Blog Post

Adversity, which looks and feels like such a determined enemy, can become a valuable ally. Only you can decide which it will be.

— Joni Eareckson Tada

Fibrodysplasia Ossificans Progressiva (FOP) is one of the world’s rarest diseases and the only known to man that turns one organ system into another. To put it in simple terms, it turns muscles, ligaments, and tendons into bone. FOP appears at a variety of ages in different patients, but it lasts forever. As you grow older, it will only get worse and more debilitating. I chose to name my blog Medulla Ossium because it is the latin translation of bone marrow. When I was brainstorming, I wanted it to be about the struggles I have because of FOP, but also looking beyond the bone. It was then that I thought of bone marrow. Bone marrow is the tissue found in the spongy part of bone and it is where new red blood cells are made; it is a place of growth. I found it fitting that you must look beyond the bone in order to reach this new growth, and that is just what I plan on doing.